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Preparing for a Hen Do with Fibromyalgia

I'm not going to lie, I've got an insanely busy few months coming up. As someone who is used to spending a lot of time alone, this is genuinely so different to my normal life, but I'm so happy about it! I did a quick post earlier this year going over some of the things I've got going on this year, so I thought I'd share some posts about how I'm preparing for these with regards to my fibro.
First up I've got two hen do weekends for two amazing bride to be's this year. I am so excited and crazily happy that I've been asked to attend. I've got one in Benidorm and one in Leeds, and they're both going to be jam packed with activities to make it an unreal time. But with this comes a lot of preparation on my end, to make sure I know I can have a fantastic weekend without a dreaded fibro flare. Whilst I'm fully expecting to need a bit of recovery after, I'd like to try and make it through both weekends without a flare up.
1. Start Preparing …

The Fibro Diaries | What I Wish I'd Known About Fibromyalgia

I'm sure everyone has that feeling where you wish you could go back in time and redo something knowing what you know now. I think this plenty of times, especially when it comes to my health, so I thought I'd share with you the things I wish I'd known before I started to experience life with Fibromyalgia.

1. It's a lot to get your head around

I'm sure I'm not the only fibro warrior out there who is still trying to understand what's going on when it comes to fibromyalgia. I may only really talk about pain and fatigue on my blog, but there's so much more to it! The first thing I was told by my consultant when he diagnosed me with fibromyalgia was 'do some research on it'. There's still so much unknown, but the best thing you can do is to sit and read whatever you can so you can begin to understand it.

2. You might start to lose yourself...

...but you'll soon find yourself again. There's certain aspects of fibromyalgia that make living your life pretty difficult. You might find yourself being unable to do all the things you used to do, whether that be physically or mentally, but don't give up on yourself! Take some time to get used to how your body is now, and then you can begin to build yourself back up. It's easy to fall into a rut, I know I did, but I'm slowly getting back to who I was before. I might never get to be exactly the same, I'm always going to have pain and fatigue getting in the way, but I know how far I can push myself now.

3. Make sure you reach out for support

This is something I still struggle to do, I hate feeling like I'm a burden on my friends and family even though I know they'd rather me tell them I was struggling. It's likely your diagnosis will take a while, there'll be tests for everything under the sun to rule out before fibromyalgia is even mentioned, so you might start feeling like it's all a waste of time and not worth it but this is the perfect time to reach out for some support.

4. Some people might not understand it

I'm constantly worried that people are going to think I'm lazy, overreacting or faking it, and I don't doubt that there are people who do genuinely think that. After all, it's a completely invisible illness, who can blame them? I've been pretty lucky with friends/family actually trying to understand and not automatically ignoring my feelings or symptoms, but I've also come across people who "knew everything" about fibro and yet had it completely wrong! Situations like that you just have to ignore and get on with your life, no one knows your body like you do.

5. It doesn't always get easier following the diagnosis

For most things, once you've been diagnosed with something, you move on to the recovery/curing/medication route and then thats that. Chronic illnesses though, the diagnosis is just the start. It's coming up 3 years since my diagnosis and I've barely progressed, because it's one of those things where no one is quite sure what's causing it and how to "fix" it. There's a long road ahead of anyone who has been diagnosed with a chronic illness such as fibromyalgia, so another reason why you should listen to number 3 as well!

So yeah, these are the things that I wish I'd been told about before I started to get my fibro symptoms and diagnosis. If there's any tips you have for anyone new to the world of chronic illnesses, I'd love to hear them! It's always great to reach out and help others going through what you're going through :) x


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